Pain level is 7.5 this a.m. – meds don’t help much some days. It’s a beautiful sunny day down by the beach. I’m sitting here listening to the Beach Boys, remembering my innumerable long walks. My fibromyalgia and arthritis have robbed me of that ability. I’m chair-bound most days, unable to walk unassisted. I may be robbed of my mobility but my memory is darn good. I have the benefit of revisiting those gloriously adventurous, almost endless days of walking all over the world…from one side of Paris to the other, from Sacre Coeur to Napoleon’s Tomb…loving every step on

I’M TIRED OR SOMETHING My good friend just told me she is paralyzed with malaise. This is much the same situation I had just revealed to her. I sit here, with her in mind, wondering the same exact thing she tells me she wonders. I’d give almost anything to know what causes this malaise or something whatever it is. I never know when it is going to happen either. Why does it come when it comes?  It does not seem to matter whether you have big plans (goals to look forward to) or little inconsequential plans (no big deals going

I have been absolutely paralyzed by my increasing pain level. If I have to go see another “pain” specialist I’m going to scream my bloody guts out. I just got a text from a colleague who is a nurse. She suggested I change my medication regime. She’s on vacation right now. Sitting on the beach some place. I’m not unusual.  I deal with degrees of severe pain 100% of the day and night from combination of back pain, arthritis and fibromyalgia. Most of us who face this challenge have tried nearly every combination of meds usually used for auto-immune disease

thinking.